The Everygene FAQ

Questions & Answers

About Everygene

Everygene, PBC brings hospital-grade genetic testing to cardiomyopathy patients and their families.

As a Public Benefit Company, our mandate is to accelerate scientific progress toward finding a cure for genetic cardiomyopathy.

We’re 100% focused on health. Unlike other companies that offer entertainment, ancestry, or wellness insights, Everygene is dedicated to helping patients use genetic testing to better understand and manage their condition. We don't try to do everything. We specialize in performing this test exceptionally well.

About the Test

This test is for patients who have been diagnosed with non-ischemic or idiopathic cardiomyopathy.

Yes. If your previous testing was inconclusive or identified a genetic cause, you may still qualify and benefit from additional testing.

Yes. If a family member has tested positive for a genetic cardiomyopathy, you can get a genetic test for $349.

Everygene uses hospital-grade genetic testing developed in collaboration with Broad Clinical Labs and Mass General Brigham—two of the most trusted names in genomics and medicine.

All samples are processed in a CLIA-certified lab, and every result is reviewed by a board-certified clinical geneticist.

If we find a positive result, we re-run your sample using a second method to confirm it before releasing your report. It’s the same process used in top academic hospitals—and it’s built into every Everygene test.

Timeline & Support

Results are typically available 4-8 weeks after we receive your sample.

Once your results are ready, we will send you an email and a message in your patient portal.

For anyone who tests positive, we offer a free, 30-minute genetic counseling session with a licensed genetic counselor. Every person who gets tested also receives results from Mass General Brigham and an easy-to-read action plan, all in your patient portal under "My Results".

Please email us anytime at support@everygene.com. Also, for positive results, there is a chat function available under the "Results" tab in your patient portal to ask your assigned genetic counselor questions for up to 60 days after you receive your results.

Sequencing & Testing

Sequencing is the process of reading the complete or partial DNA code from your sample. Testing involves analyzing that DNA information to look for specific changes or variants that may impact your health.

Your DNA is sequenced at Broad Clinical Labs, the largest sequencing lab in the U.S.

Your genetic test is done at the Laboratory of Molecular Medicine at Mass General Brigham.

Yes. Everygene uses whole genome sequencing, which means we read nearly all of your DNA, not just a small panel of genes as many other tests do.

We also give you access to your full genome data file (a downloadable .vcf), so you can use it however you choose, including with other tools or services now or in the future.

Your genetic code doesn’t change, and as science advances, your data will continue to be valuable for years to come.

Data

Everygene will never share your personally identifiable information with third parties.

Everygene de-identifies and aggregates any health data that can be used specifically to treat or cure genetic cardiomyopathy and "throws away the key" so it cannot be re-identified. We may share this de-identified and aggregated data with researchers to accelerate scientific progress specifically toward finding a cure for genetic cardiomyopathy.

Genetic and clinical health data, once combined and analyzed, help researchers better understand the underlying causes of genetic cardiomyopathy. This accelerates the discovery of new medications and treatments, bringing effective therapies to patients sooner.